Visit Hunter's Hope Equipment & Supply Exchange here: https://www.huntershope.org/family-care/equipment-supply-exchange/
Visit SMA Support site here: http://www.smasupport.com/equipment_list.htm
Visit Adaptive Mall Here: https://www.adaptivemall.com/
Visit Abilitations here: https://store.schoolspecialty.com/OA_HTML/xxssi_ibeCategoryPage.jsp?docName=V700839&minisite=10206
1) Adapted Therapeutic Strollers:
a There are many types and styles of strollers available. It is probably best to discuss the appropriate options for your child with the therapist and a medical vendor. You may also find that asking your therapist (usually PT) to join you on a shopping trip to buy a stroller is the best way to get the perfect stroller for your child.
2) AFO’s (Ankle Foot Orthoses): These are fabricated by a pediatric orthotist.
3) Bath Chairs:
4) Benik Splints: http://www.benik.com These were ordered through our OT and were used to keep the flexibility in Dylan’s thumb, which tended to be pulled into the fist.
5) Benik Vests: A vest that covers your child’s entire trunk and provides extra support for the back and abdomen.
6) Jiggler: www.Abilitations.com
7) Knee Immobilizers: http://www.rcai.com/
These are typically ordered through an orthotist so that they can be billed to your insurance, but you can also order them directly and pay yourself. RCAI (Restorative Care of America) carries a good version.
8) Nuk Brush: Oral stimulation device http://www.beyondplay.com/ITEMS/T496.HTM
9) Oxygen: If your doctor prescribes oxygen for your child, your hospice organization will be able to assist in providing an at-home oxygen tank for your child.
10) P and Q rings: For sensory and oral stimulation http://www.amazon.com/PS-AND-QS-CHEWY-TUBE/dp/B0018C0HTI
11) Percussor: for stimulation and relaxation of muscles.
New Dimension Percussor Instrument by IMPAC
P.O. Box 353 Salem OR 97308
12) Pool Chair (see listing for Bath Chair) - Dylan seemed to enjoy time in our pool in the summer, but he was not able to control his body enough to sit in normal baby floating devices. Phil built a pool chair from PVC pipe that allowed his bath chair to be placed on top of the PVC “box” so he was comfortable in the pool. 13) Pulse/ox Monitor: This machine measures the amount of oxygen your child’s blood is carrying. A pediatric version can be placed on your child’s finger or toe. Generally, the reading should be at least 95%. Changing your child’s position may increase or decrease the oxygen %. Discuss with your doctor if the percentage is below 95%. Also discuss what your child’s “Normal” range is.
13) Standers: Weight bearing activities strengthen bones and increase circulation.
14) Strollers (see also “Adapted Therapeutic Strollers” above and “Wheelchairs” below ): It is important to take your child to the store to see how the stroller fits, if at all possible. We were quite surprised when we tried different ones. Strollers with a 5-point harness (see photo #12 below) are quite common now (and much more effective), but were just coming out during Dylan’s illness. We liked the shape of this one:
a Quinny: http://www.quinny.com/us-en
15) Suction Machines: These machines act as a vacuum with a small nozzle that can be inserted into a child’s mouth if they are struggling to manage their saliva.
16) TLSO (Thoracic Lumbo Sacral Orthosis): This is custom molded by an orthotist with a referral from your primary care physician. The PT and orthopedic doctor can determine if this type of brace would be helpful in maintaining proper spinal alignment. It can be worn for a few hours at a time, or longer depending on the deformity. It can also be used as support for sitting activities if the child still demonstrates head control.
17) Adapted floor and feeder sitters with bases that allow for adjustment of incline https://www.specialtomato.com/
18) Weighted Blankets: http://www.sensacalm.com/weighted-blankets/?gclid=CMLivrqPva0CFQpV7Aod0W9YCQ
There are many places on the internet to buy weighted blankets or you can make them yourself from online directions. They can be filled with a variety of objects, such as beans or popcorn, which make them heavy. The rule of thumb is that the blanket should be 10% of the child’s body weight. If you are using a smaller pad, (such as a lap pad), the typical rule of thumb is 5% of body weight (because it is not covering the entire body).
19) Wheelchairs: Proper head and neck support are key for comfort and optimal breathing. Supportive strollers and wheelchairs are very expensive. You may be able to work with your insurance company to secure one of these. Your Physical Therapist should help you with the selection and fitting of the wheelchair, which will need to be adjusted over time.